Monthly Archives: October 2009

Technical Difficulties

We have experienced some technical difficulties with the site, but we are up and running again.  I lost one entry and will have to remake it later.  If you missed it, it was about Janell’s mother’s visit and our church history trip and of course, Lillia. Lillia is doing great and gaining weight every day.  She is doing all of the normal baby things as well.  Thank you for visiting the site.




Lillia Update

We are so grateful for all the prayers and help we have recieved in Lillia’s behalf. She has been such a strong little girl and we feel very priviliged to get to be her parents. This last week she experienced sugury where they put in a shunt and it seems to be working nicely. Her head cirumferance has gone down which is very good. She has finished her round of antibiotics for her lung pnumonia (sp?) and doctors say that that looks very good. She has been doing pretty well with her feedings and so we are crossing our fingers that we will get to bring her home sometime next week for a little while before her next surgury. In about a month she will come back to repair a liver hernia where a piece of her liver is pushing up into her diaphram. She has been such a strong little girl and she is such a beauty ( I swore that as a mom I wouldn’t spoil my kids but after all that she has been through, I just want to give her what ever she wants!)

Our next obstacle will be her next surgury in a little over a month and then just hoping that her shunt will continue to work correctly and that her brain will expand so that she can be developmentally as normal as possible.  (Below is her diaphram and the shunt tube curled around her stomach.)


Update – baby and Mom, both doing well.

Our baby is now in a crib in the nicu and is doing very well.  Janell is walking and feeling much better.  Her release date should be tomorrow.

Horray for being born!!!

Lillia Lynndee Robinson was born at around 2:00 today kicking and screaming.  She weighs 6 pounds 14 ounces.  The C-section went smoothly.  She is very healthy and normal except for her enlarged head.  For those of you who don’t know, she has hydrosyphallus (SP) and will undergo brain surgery fairly soon.  We don’t yet know how it will effect her ultimately, but right now she is in very good health and we are very happy to have her.  She also has very long legs and is very active and cute.  Mom is also very healthy and happy.